Laura Conrad

Upgrading the Desktop

I said I was looking forward to doing it
based on how well the new version worked on the laptop. I’m
pretty well done, and I’m not really looking backwards with
fondness, but upgrading is really a lot easier than it used to
be in the bad old days.

Doing the upgrade

To begin with, when I first tried it yesterday via the standard
network upgrade, it downloaded a
few packages and then hung. When I tried it again, it downloaded
a few more and hung.

This didn’t happen when I upgraded the laptop, but that’s
probably because I didn’t do that the day after the release was
official.

So I read the instructions, and found a way
to use a bittorrent to get the CD and upgrade from the CD
images. This was quite fast, and I had the upgrade completed in
only 3 or 4 hours. I didn’t have much time between then and when
my dinner guests arrived to check things out, but there wasn’t
anything obviously wrong.

Finding the problems

As I mentioned, I use the desktop for a lot more different
things than I do the laptop, so it’s only to be expected that
there will be more problems.

First, the good news — I can use the -# option to the lpr
command again. This is going to make Tuesdays, when I print new
music for the Cantabile
Band, much less irritating.

Now for the (relatively) bad news:

The other problem that seemed to be fixed on the laptop was
that audacity didn’t make any sound when it played music. This
was still true on the desktop. So I deleted the
$HOME/.audacity-data directory, and now audacity plays. Maybe
that would have worked without the upgrade.
When I went to send mail, I got an error message about
gnutls-cli not being there. I checked and mail seemed to be
being sent anyway, but I posted a message to the gnus newsgroup,
and two people replied with the name of the package that now
includes gnutls-cli. So now I’m not getting the error message.
I didn’t get an answer to my question about what gnutls was
doing, and of course I should file a bug on gnus in ubuntu for
the upgrade not having happened correctly.
My key repeats have gotten a lot slower, so I’m going to
have to figure out how I set that and set it to a different
number.
When I post to a newsgroup, it now complains that my .sig is
too long, when it’s any longer than one line. I thought four
was a fairly standard limit; I’ve never heard of two being
considered asocial. I tried two different mail2news gateways
and they were both doing the same thing, so it may have to do
with the upgrade. I’ll try to find it; I know some of my quotes
are too long, but you should be able to say something.

On the possibly good news but not yet verified front — firefox
may be leaking less memory.

Bonnie: Diagnosis

I posted previously about
the complete misdiagnosis when she first went to the doctor
complaining about being out of breath.

Once she got to the hospital, and they were running all the
tests they could think of all the time, things proceded much more
efficiently. She had scans during her time in December in the
Salem Hospital which indicated some kind of tumors in the
abdominal cavity.

She wrote my sister, who has a large Christmas party every year, on December 30:

As you probably know, I’m just out of the hospital after a stay of 3
1/2 weeks. Laura kindly bailed me out on Friday. I was hoping
against hope that I would feel well enough to come to your concert and
party today, but, with the long drive and all, it just wouldn’t be
prudent. Though I have short bursts of feeling fairly energetic, I
seem to need lots of bed rest and naps. I’m sorry to have to miss it.

Unfortunately the future won’t be clear sailing for me. Though the
underlying cause of the blood clots hasn’t been definitely diagnosed
yet, most likely I’ll be undergoing some type of chemotherapy at Lahey
Peabody, where my regular doctor is located. I’m trying to keep a
positive attitude, but everything feels very uncertain. So, please
think of me when you sing “Let memory keep us all”.

We thought of her not only when we sang Let memory keep
us all, but also during the singing of
Messiah, where she had for several years been the
reliable person on the top line.

It must have been shortly after this that I asked her directly
if she had a diagnosis yet, and she said, “Yes. Cancer.”

I replied, “That’s not a diagnosis — a diagnosis is something
like Stage II Pancreatic Cancer, or Stage IV Liver Cancer.
Once you have that, then you can go on the internet and look
up the possible treatments and the 5-year survival rates.”

She said she thought she was scheduled for more tests that
might be to produce something like that.

When I asked her later, probably very near the surgery that
ended her life as a vocal conversationalist, she said it was a
cancer of the reproductive system. We assumed that this meant
ovarian, as that would be the scariest kind, and didn’t press
her.

I assume they had a diagnosis on paper, because there was one
course of chemotherapy in early February.

After the surgery on February 15 (see timeline), the
doctor reported on there being a lot of cancer, but not on any
specific diagnosis. It was only after this, when I became her
health care proxy, that I was talking to the doctors
directly. The first lengthy conversation with an opportunity
to ask questions not related directly to particular treatments
was on March 12. The doctor we spoke to (Phyllis, who was the
alternate for the health care proxy, and her husband were
there, too) definitely told us it was uterine cancer. I have
checked with Phyllis, and she remembers it that way, too. He also
said that the chemotherapists had agreed that there was no
benefit to further chemotherapy. So I didn’t press him for a
stage or anything, because it didn’t seem likely that there
was any treatment to consider. His prognosis, which was that
she had a small number of months, did turn out to be correct.

Here’s something that’s different from the TV shows — when I
actually started seeing pieces of paper with the diagnosis on
it, it was always ovarian cancer. There was an application
the Rehab hospital filled out for MassHealth (her insurance
was hitting limits on numbers of days in various kinds of
care, after only three months of this), and the admission to
the hospice, and finally the death certificate, and they all
said ovarian cancer. So I assume the doctor just had it wrong
(he was a respiratory specialist, because at that point the
major aim of her treatment was to wean her off the ventilator
she’d been on since the surgery). I can’t imagine why at that
point he’d think there was any point in misleading us. Or
maybe earlier tests had suggested a different primary site for
the cancer, and he hadn’t read all the later material.

When I was talking to people immediately after Bonnie died, I
said I’d like to write something about the experience, and
particularly about the ways in which it wasn’t our health care
system’s finest hour. One of the things the social worker at
the hospice suggested was that I might want to get a copy of
the medical record to do that with. It probably would have
been a good idea, and certainly might have shed some light on
this particular conundrum. But I haven’t done it.

What to put on a Linux netbook

A friend who’s going to England soon and doesn’t want to carry
his Macbook, but wants to be able to check email, bought a
used netbook with Linux on it. He’s used Unix at work quite a
lot, so he wasn’t expecting to have much difficulty with
Linux.

I don’t know that it was especially difficult, but he was
complaining about how time-consuming it was while he figured out
the package management system and found the names of all the
programs he needed to load.

I have a lot to do this morning, so I thought posting this
correspondence might be useful and quick.

At one point, he wrote me:

Spent far too much time figuring out the netbook. Have better
understanding of the Package Manager now. Installed emacs, ed,
lynx, audacity, ghostview and some other stuff. Still need
ssh and scp. Still need codecs for audio and video — probably
a big list, including h.264 and AAC/FLAC for sure. And MIDI —
Acer’s version of mplayer won’t play midi files!

Any suggestions for codecs, utilities?

and I replied:

I use timidity for playing MIDI.

In ubuntu there’s a package called something like nonfree-extras that
has all the codecs you generally need. It will install it if you try to
play something it doesn’t have the codecs for.

If you don’t have xpdf, you need it. The default in ubuntu [evince] has some
bugs that make the lilypond output look bad.

If you run into audio problems, gnome-alsa-mixer can usually fix them.
It has more knobs and buttons than the other mixers. Their names don’t
make sense, but if you twiddle them for long enough, the audio starts
working.

If you want to read books, get FBReader. The latest version will go out
to the web and get anything out-of-copyright for you.

For system monitoring, I use something called gkrellm, which has a bunch
of little programs (called krells) that will tell you the weather and
the phases of the moon and how busy your cpus and disk drives are.

ssh is probably called openssh, and you probably need both server and
client.

I don’t know what you use for graphics, but getting imagemagick is
probably a good idea. Gimp is overkill unless you really want to do
high-powered stuff, but being able to convert between formats is good.

I find gnumeric less bloated for spreadsheets than openoffice. And you
can read Word documents with just the wv package.

Hope this helps.

Later, in a message titled
Yahoo! Acer runs stuff!, he wrote:

I saw more of the useful ssh stuff in Add/Remove today,
Oh is there stuff. Pages and pages of stuff, most of which
I’ll never need nor want to put on here.

and I replied:

I forget what the command line search for rpm’s is [rpmfind], but I never use the
GUI for exactly that reason. On ubuntu, I would say something like
“apt-cache search openssh”, and pipe it through grep if it gave me too
much stuff to read.

Roasting coffee

Some of my homebrewing
friends have been experimenting with roasting their own
coffee. I’m not able to taste the results of their experiments,
because I’m extremely sensitive to caffeine, so I only drink
decaffeinated coffee, and that isn’t what they brew.

But the smell of what they do is certainly tantalizing, so I
spent some time drooling over the Sweetmarias.com website. I
ordered some coffeemaker cleaning stuff, and a new
German-engineered coffee grinder, and found I was enjoying
spending a bit more time on my coffee-brewing method and getting
better results. So last week I took the plunge and ordered a Fresh
Roast Plus 8 Home Coffee Roaster and eight different kinds of
decaffeinated green coffee beens.

If you want to try this without spending money and kitchen
space on a single-purpose gadget, you can read the instructions
for doing it in a popcorn popper at SweetMaria’s, or this instructable.

Anyway, I have roasted one batch of Kenya AB
Auction Lot WP Decaf coffee and I can
report:

Next time I will follow the instructions to do the roasting
under the stove hood, or outdoors on the fire escape. Compared with how
good all the other smells to do with making coffee are, the
smell of beans roasting just isn’t the way you want your house to smell.
But once you’ve roasted it, and are handling the beans, it’s
definitely worth it to smell the fresh roast. I like opening a
new bag of commercially roasted coffee, and this is much
better. The description of this coffee on the bag is:

Lively, bright cup with citrus, meyer lemon,
caramel and floral sweetness.

You can really smell
most of that without brewing the coffee at all.
I knew I was going to have to make adjustments to my brewing
method when I changed my buying and roasting methods. This
first batch is definitely not as strong as I like my coffee, but the
flavor is really good.

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The Boston Marathon

The marathons I like are the ones where the winner runs across
the finish line looking like he or she isn’t even breathing
hard.

Of course, it’s more exciting when there’s more than one person
at the end and they have to sprint. Yesterday’s women’s race had
the first and second place runners separated by a second, and
the second place woman collapsed and had to be taken to the
hospital immediately afterwards. The TV announcer said, “She
gave it everything she had,” like that was a good thing. But in
my opinion, the point of sports is to produce a healthy mind in a
healthy body, and it can’t possibly be healthy to abuse your
body like that.

The only runner I’ve known personally who finished the Boston Marathon spent the
next few weeks on crutches — he’d sprained his ankle at
about mile 15 and finished anyway. I don’t think this is
healthy either.

Following up

Spring

I mentioned that I’d retired my winter jacket for the Spring on
Good Friday. This turns out to have been a
couple of days early, as there was a cold, raw wind on Easter
Sunday morning. Since then, my lightweight spring jacket has been
fine, though.

Baseball

Immediately after the Opening Day game that I wrote about, the Red Sox all (except first baseman
Kevin Youkilis) went into hitting slumps, and the starting
pitchers all had trouble getting hitters out. Luckily, the
defense and the bullpen were solid.
Amalie Benjamin of the Boston Globe wrote an article saying:

So the day after Beckett said the Sox have to pitch
better, have to play better, have to do everything better, nothing
was better.

And a disgruntled fan commented:

I fully understand that it is early but like Yogi
Berra once said It can get late early!
sportsbozo1

This week they seem to have gotten everything better, and the
starting pitchers are pitching for 6 and 7 innings and the hitters
are hitting the way we expect them to.

More transcription woes

I didn’t get the corrections to Upon a hill right the first
time. All the parts ended at the same time, but for every
cadence, the cantus part cadenced later than the other two parts.
I didn’t notice listening to the MIDI file, but
when the woman singing that part, who’s a very experienced singer,
was having real trouble making it sound right, I looked at the
score, and made some more adjustments.

Handmaid’s Tale

Read the Mccarthy review after posting my review, I think the
book has gotten a lot more scary since 1986.

Chocolate Chip Brioche

I went to a large party last night and baked two batches of my
bread machine brioche, one with fruit and nuts
and one with chocolate chips. People liked both of them, but I
don’t know that I’ll repeat the chocolate chip one. One of the
points of that recipe is how much fun the dough is to play with,
and with the warm chocolate chips in it, it isn’t as much fun.

The Handmaid’s Tale

The book by Margaret Attwood is
one of my favorites. In fact, it’s the first Margaret Attwood I read — the
New York Times ran a review by Mary McCarthy
which as I remember it was a bit snarky, but it convinced me I’d
be interested in the book, so I went to Harvard Square (probably
the late, lamented Wordsworth) and bought it. Then I read and
mostly bought all her other books.

I wasn’t getting to the movies much in 1990 when this one came
out, so it wasn’t until looking at Natasha Richardson‘s filmography after she died that I remembered
that I wanted to see it and put it on my netflix list.

It’s a good movie — visually quite beautiful, with two stellar
performances by Natasha Richardson and Robert Duvall, and good
acting and writing all around.

It’s mostly pretty faithful to the book, with the amount left
out that you have to leave out to keep a movie under two hours,
and things made explicit that are implicit in the book to make
it easier to comprehend in two hours.

The big disappointment, though, was that they changed the
setting. The book is actually one of the great Cambridge novels
— as a long-time Cambridge resident, I can almost tell you
where the Red Center and the Commander’s house are, and the
Savaging takes place in Harvard Yard. I also know exactly what
store is currently on the corner in Harvard Square where the “Prayer
Store” is, which Ofglen can’t remember what used to be there.

My theory while I was watching was that Harvard had decided it
didn’t want to have a state-sponsored lynching filmed on its
precincts. IMDB says that filming in Harvard
Square would be too difficult, and Harvard has a “no filming”
policy in general. This is probably not quite true — weren’t
both Paper Chase and Love story filmed there?

In any case, read the book, if you want both Cambridge local
color and a chilling reminder that it can happen here.
If you want a beautifully filmed experience that
causes you to be able to really feel what it would be like to
plunge a knife into a powerful man’s neck, watch the movie.

If you haven’t read any Margaret Attwood, they’re all pretty
good. I would start with either this one or Cat’s
Eye, if you can stand remembering elementary school that
well. Her essays and poems are also worth reading.

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Recorded Music Library on Linux

Compared with people who use ipods, I’ve been late getting my
music on line and computerized.

The reason I don’t use ipods,
or some more open version of the same thing, is that I don’t
really enjoy listening to music through earbuds or
headphones.

So when I’m home or in the car, there’s no problem playing CD’s
through speakers. When I’m somewhere else, I either listen to
whatever music is playing there, or don’t listen at all.

But of course, one of the things computers are good at is
organizing and cataloging things, and CD’s are especially suited
to being catalogued that way, because they usually have all the
information on them, in the metadata.

So in the last few months, I have compacted and catalogued my
cd’s on the computer. They now sit in two large notebooks on my
living room bookshelves, most of them are in a directory on an
external hard drive in .flac format, from which I could recreate
the CD if I needed to, some of those are in a directory in MP3
format which I could play on my cell phone if I wanted to, and
my home network is set up so that I can play the music off the
upstairs computer on either the laptop or the media center
computer in the living room.

SOFTWARE

Here’s the LINUX software I use to do this:

sound-juicer takes the CD’s and reads them into the
directory on the computer. I use flac as the output format. It
turns out to be important to set the preferences to “strip
special characters”; otherwise you end up with directory names
with commas in them, and most of the programs that want to do
something with the directory (like back it up, or convert the
flac’s to mp3’s) are going to have trouble with that.
I use rhythmbox to play the music on the computer. If it’s
running on the upstairs computer, you can play the music it sees
on the downstairs computers automagically, without configuring
networking drives or anything. It has lots of options for
having the computer make pretty colored patterns based on the
music and getting the lyrics off the web (this seems somewhat
unreliable for the music I listen to) and accessing internet
radio stations like last.fm. I turn out to actually sort of
enjoy putting “shuffle” mode on and listening to random songs
from my entire collection, as long as I’m close enough to the
“next” button to skip something I”m really not in the mood for,
or that really doesn’t make sense out of context.
I use brasero these days to write CD’s. It definitely beats
remembering the options to mkisofs and cdrecord, like we used to
have to in the bad old days. I haven’t been
making mix CD’s from the music, but I’m pretty sure I
could.
If I just want to play one song and I know where it is in
the filesystem, I usually use mplayer from the command line.
soundconverter converts all the .flac files in a directory to mp3 files in a different directory.

I installed all of these programs from the Ubuntu repositories.

CAR

I did try out one of those devices that transmits music from an
MP3 player on an unused FM frequency that you can tune your car
radio to. It didn’t work consistently enough, so I gave the MP3
player and the radio transmitter to a friend who lives where the
radio spectrum isn’t quite so crowded. I don’t know if she uses
it or not.

One of the binders I put all my CD’s in came with a cd holder
that velcros onto the sunshade in my car, so I just put a few CD’s
into that and play them when there’s nothing good on the
radio.

If that ever seems too restrictive, I might buy a new car radio
with an input jack or an SD card reader. But I think that’s a
ways down the list for the toy-buying budget.

Other places

I can use either my phone or my Nokia N810 to carry music with
me. I also have a small portable Sony speaker that I can plug
into either of those devices. (They do both have speakers, but
certainly you wouldn’t want to listen to music on the phone for
any length of time; the Nokia is less tinny but still pretty small.) So when I buy music from the Amazon
MP3 store, I can still play it to my friends, although not quite
as easily as bringing a CD to a house with a CD player.

Exercise

I usually get a burst of energy for improving my exercise
habits sometime in April. Often it’s after watching the Boston
Marathon, but this year it happened a couple of weeks
before.

I have occasionally been someone who goes to a gym and puts on
funny clothes and works out on a machine for 20 minutes to the
terrible music they play and then
does some yoga. This has always been when there was a gym in the
building I worked in and it was a way to take a break from my
job. I actively like rowing on a rowing machine, and would have
one if there was room in my Cambridge apartment, but there isn’t.

Now that I work at home, there’s a lot less incentive to put up
with the travel time to the gym and the clothes and the music.

I have a clothes rack in my bedroom that if unfolded correctly would be a
Nordic-trak ski machine. I’ve never really liked the noise it
makes, and while unfolding it and folding it back up doesn’t
take as long as getting to the YMCA would, it’s still a fair
amount of overhead.

Anyway, when I have had the aerobic exercise habit, I’ve been
just as obnoxious as other people about its benefits. One that
doesn’t get mentioned very often, but I’m pretty sure it’s true
for me, is that my hair grows longer.

None of this prevents me from getting out of the habit for
years at a time. Since my most common mode of exercise (when
I’m not taking breaks from work at a gym) is walking, I most
recently lost the habit when my hip arthritis got too bad, and
then I didn’t take it back up after the surgery in January of
2008.

Even with my April exercise energy, and even though my ability
to walk (at least on flat terrain) is roughly back where it was
before the arthritis and the surgery, I still haven’t been able
to get back to walking anything like aerobically because I do
most of my walking with the 12 year old dog, and his hips seem to be about
where mine were before the surgery.

I occasionally get an idea for how to do aerobic exercise that
doesn’t depend on equipment or going somewhere you don’t want to
go. I’ve done a certain amount of
dancing to my recorded music collection. A couple of years ago,
when the hip was getting bad, I decided you didn’t have to get out
of your chair if you waved your arms vigorously enough, and I did
some conducting to my recorded music collection. If you do yoga
standing poses with downward dog in between, it’s aerobic.

This year’s idea comes out of this article in the New York
Times. When I actually read it, I didn’t think anything except
that the typical office building stair well sounded even worse
than the gym as a place to exercise. But then a couple of weeks
ago, I realized that I have two flights of stairs in my own
apartment, and if I just go up and down them a few times at a
reasonable clip, that would be the exercise, without going
anywhere I don’t want to go or changing clothes or anything.

So I hum Souza marches and go up the stairs at that tempo.
When I get too out of breath to hum the march, I stop.
Sometimes I do this twice a day. I haven’t been doing it long
enough to grow my hair longer, but it does seem to be having the
normal short-term effects. A new one is that my fasting blood
sugar is much more reliably under control when I’ve done even a
short stair-climbing stint.

Primary Care Providers and the death of Bonnie Rogers

This is part of my series of posts about the death of my
friend Bonnie
Rogers.

As I reported in the post Timeline of
Bonnieâ€™s death, she was having unusual problems with lack
of energy for a couple of months, and serious problems breathing
for a couple of weeks before she managed to call her doctor and
make an appointment.

I had urged her to talk to the doctor as soon as she told me
about the breathing problems. I didn’t feel vindicated by her
doctor’s response, which was in fact a complete misdiagnosis,
and not at all what they do on doctor shows on TV (except occasionally
House).

She wrote me:

The doctor says I have mild anemia and should take an iron supplement,
but she has ordered some kind of test for pulmonary hypertension as
well as a colonoscopy some time in the near future. Pulmonary
hypertension is relatively rare, but from the descriptions on the
internet it makes sense that it might be the underlying problem. I
don’t remember what the name of the test is.

Please avoid mentioning pulmonary hypertension [to the group]. … I’d like to avoid it at least until I
really know what’s going on. I’m going to try to just speak
nonchalantly about anemia if the subject of my health comes up.

I was quite sure that Bonnie’s breathing problems weren’t “mild
anemia”, and in any case even mild anemia in a post-menopausal
woman usually points to something else wrong. (That doctors accept it in
menstruating women is a problem, but that’s another post.)

But the doctor had never seen Bonnie before, and she was obese
enough that it wouldn’t surprise someone who didn’t know her that
she should get out of breath easily. Those of us who knew how
seldom she complained about anything, and how active she managed
to be even with major disabilities, knew that her complaining
about being out of breath meant that something serious was wrong.

I like to think that my own doctor, whom I’ve been seeing since
1995, knows how seriously to take my complaints, but she might
well do only the minimum testing on someone she didn’t know with
an obvious diagnosis of obesity compounded with anemia, too.

But to continue Bonnie’s story, when she went to the emergency
room the next day, she was admitted to the hospital with a
diagnosis of blood clots in the lungs. The testing in the
hospital lead to a diagnosis of cancer in the abdominal cavity.
When they released her, they made appointments with both the
primary care physician (PCP) and an oncologist, neither of which was she
able to keep because she needed to go back into the hospital.

After I got the power of attorney and started getting Bonnie’s
mail forwarded to me, I got several notices of appointments, and
postcards saying to call for checkups, even after she had died.
So the record system leaves something to be desired.

This is a clear case of a managed care system not managing a
serious illness very well. I personally have always used managed
care when it was available to me, and I think it works very well
if you do some of the managing yourself. As I said, I’ve kept the
same doctor (actually a nurse practitioner) for well over a
decade, and when something serious happens that she isn’t involved
in, she seems to get records and ask me questions about what she
wants to know that isn’t in the record.

Bonnie had had to switch
plans in the year previous to this story because of going on
medicare, and had not been especially aggressive about getting an
introductory appointment with her new doctor. I’d say one of the
morals of Bonnie’s story is that this was a mistake, and she
should have tried to establish an ongoing relationship with a
primary care provider. Then she would have felt better about
making the appointment when she first noticed problems, and maybe
the doctor would have known to take her complaints more
seriously.

I should add that the obesity probably contributed to this part
of the problem, too. When Bonnie saw a new doctor, she was
usually given some fairly routine advice about weight loss, which
she had of course heard and thought about many times before, and
usually didn’t find she could communicate her disagreement with
its application to
her own case very well in that context. So she didn’t look
forward to the initial encounter with a PCP.

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